So far cyclosporine has been OK. My symptoms are gradually coming under control, and although I have the odd side-effect from it, the trade-off is fair.
Today, for instance, I was able to walk up the hill and then downtown (using one cane for support). It was a walk of about 2 hours with only a [...]
After a few months of plasma exchange treatments, I am now walking outside with one cane, climbing the hill from Pacific to Davie, and I am nearly able to stand from a crouching position without using my arms. Just in time for the arrival of the new low-floor trolley buses, I can now climb the [...]
In early June, i got to my weakest state yet. I had a lot of trouble getting out of bed, standing from a sitting position, and going for more than a couple of hours without a nap. I had been using two canes for several weeks, but then the effects of my previous IVIG treatment [...]
Today, I got a wheelchair. This chair is only a temporary loan from the Red Cross. I can’t safely walk with two canes anymore. I don’t know when o I’ll be walking again. Hopefully soon.
So far, I’m on Prednisone (50 mg daily), Imuran (150 mg daily) and IVIG (75 grams every four weeks). Since [...]
Last summer, I was driving Amalia around one day getting groceries. My left hand had a pins-and-needles sensation. Not really severe, just enough to be annoying. Within a few days, when I hadn’t had a heart attack, I didn’t think much more about it. Then some numbness and mild pins-and-needles returned, in the fourth and [...]